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Adenocarcinoma - just diagnosed

Colorectal Cancer | Last Active: Apr 26 9:22am | Replies (75)

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@cvestor

well you did go thru the ringer and you are alive Congras to you Surgery is not an option for me as it will take away my sphincter as by the words of the surgeon whotold me to go away & die. SO no surgery anyway will help unless I want to live like a hermit with a bag. WHich when folks hear you have this they look at you & stay away like you have the plague They leak they stink and basically terrible Dead would be a better way to go
Chemo & radiation is the other way to go but then hair lost would be pernment. As my hair just does not grow So bald forever with more strange looks and people avoiding you as what I have they fear they will get.
I give you lots of thumbs up for what you did but my choices are down to chenical or death by choice

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Replies to "well you did go thru the ringer and you are alive Congras to you Surgery is..."

I'm so sorry your perspective is really that pessimistic. I sincerely hope you could get other medical opinions. There might be a way to save your sphincter. It might be a matter of finding the right surgeon.

The bag is not that bad. They told me it was a choice between a bag or a box (coffin). My hair also grew back fully. I had the operation when I collapsed from diverticulitis. The contents floated around my abdomen. They had to filter it out and bombard me with drips full of antibiotics before operating. 37 lymph nodes removed (12 were positive). My weight dropped 45 pounds. I was put on 8 rounds of chemotherapy. I am now nearly 3 years from op. My weight is back to normal. I take no drugs I just get scanned every 3 months. My original diagnosis was corectal cancer stage 3c. There IS hope. A lady I got to know was a 32 year old mother with stage 4. She is still with us today and looking after her 3 kids. I know you have been dealt a bad hand. We all have. But please don’t give up. I’m not giving up and neither is the mother I mentioned. One in every two people are going to get it. We are far from alone. We need to to support each other - even if it’s just a few words on a message board to someone across an ocean.