← Return to Autonomic Dysfunction + POTS + LUPUS + Tachycardia = Rejection Letter

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@pb50

I’m old and chubby now so it’s less of an issue, but I had very low BP all of my Childhood and young adulthood. Like 85/55. I was taken to an ER once after an accident and they were about to start a blood infusion until I told them it’s always that low. I’m sure you’ve figured out to stay hydrated. Keeping fluid volume high is the best mitigant. Take a multi vitamin and electrolytes like Gatorade as part of over hydrating. And then safety protocols of going slowly when standing from sitting or prone position. Always have either furniture to grab or an ability to sit back down if the wooziness starts.

Docs in the stone age of medicine could never figure out a real solution. But good luck to you!!

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Replies to "I’m old and chubby now so it’s less of an issue, but I had very low..."

Google Normalyte. I have pots Sjogrens lupus fibro etc. I was carrying Gatorade around religiously. This has less sugar I believe and no dyes .. no preservatives. I had to find on my own to stay upright and functioning. How most of us are left to live to me is unsafe and sometimes unethical. Lack of coordination and communication when u have multiple issues isn’t ok. No one looks at the person as a whole. Been at this for nineteen years and fighting. A trip to Johns Hopkins. Things need to change for some of us patients who are really struggling to live a quality life.