I’m sorry you had such a horrible experience, beanieone.
I’m grateful my symptoms are so mild and, at least for now, tolerable. Before I started on Tymlos,, I checked with my cardiologist, who vetoed Evenity because I have mild superventricular tachycardia, otherwise known as intermittent runs of rapid heartbeats. Like you, I can’t take alendronate because of GI problems.
I’m due for a DEXA in March. Last one a year ago wasn’t great—spine -3.3 but hip not bad at -1.6 (both at scores). But I broke my L1 vertebra in October after tripping over my vacuum (proof I should never clean my home) and I do have an array of orthopedic problems like lumbar and cervical spinal stenosis, deteriorated disks, bone spurs, and the ever- common arthritis. So I’d like to have stronger bones-actually, I’d like to have stronger bones even without the other stuff.
I’d like to go off tymlos as soon as possible. I’m resigned to 18 months but I hope that’s it. I’ve read that most of the bone growth occurs in the first year and then it slows down, but I guess we’ll have to see.
Such a complicated business! I hope everyone finds something that works and that is tolerable. It ain’t easy!
Oh dear! You’ve really been put through the wringer, @anewyorker. I asked my doc how quickly results can be measured when using Tymlos and he said as soon as six months so my fingers are crossed for you. And, I agree, no housework ;). I’ve had four vertebral compression fractures. After I had been on Tymlos for a bit, my doc told me that, except for the fractures, he wouldn’t have prescribed Tymlos because my t-scores weren’t off the charts bad. Now he tells me! Thanks for weighing in. Here’s to us all for having better bones and living a stronger life. Cheers!