← Return to Renal Tubular Acidosis (RTA): is it lifelong or goes away with age?

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@colleenyoung

Welcome, @jsdms. I'm tagging @alipk to make sure they see your post. What type of issues are your young adults managing? What are the challenges?

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Replies to "Welcome, @jsdms. I'm tagging @alipk to make sure they see your post. What type of issues..."

My daughter had several UTIs before her second birthday. She had reflux from her bladder to her kidneys which was corrected with surgery. As a teenager she started to lose her hearing. My son was hospitalized many times, starting at age 12, for hypokalemia. He also was hospitalized once for pancreatitis and once for appendicitis. Not sure those were related to the kidney issues. He also started to lose his hearing in high school. They both have hearing aids, and we've been told they'll eventually lose all their hearing. For the last year+ my son has passed about 100 kidney stones. He's been diagnosed as having medullary sponge kidneys. He continues to be borderline hypokalemic, but even with a high dose of potassium citrate, his pH is high and citrate is low. The challenge right now is finding out what can be done about the kidney stones. Losing hearing is a challenge, but they find ways to adapt. We're told they'll be good candidates for cochlear implants, but we'll figure that out when we need to, hopefully much later in life. The kidney stones are a challenge and we're hoping to get some answers.