I'm not sure this is helpful...I was diagnosed with AIED 8 maybe 9 years ago. This discovery came to light with the onset of severe tinnitus following a course of antibiotics for pnemonia. After a visit with ENT he suggested a visit with a rheum MD as the thought process was perhaps my autoimmune disorder (Sjogrens) may be attacking the inner ear. She ordered a special lab test that did determine that I had AIED. My biggest concern was the rapid hearing loss and getting rid of the tinnitus. Tried methotrexate but quit after the initial dose and was afraid of side effects. What helped me the most was investing in a GOOD set of hearing aids. I got some that had a masker component. With more/better auditory gain, the tinnitus became more like a background noise, the masker (ocean waves) was helpful when sleeping. I now wonder if my lab was a false positive as I've read AIED the hearing loss is rapid and quick. None of that happened for me (the quick loss). You might want to consider a very good set of hearing aids, repeat the labs to r/o false positive and of course keep an eye on sudden rapid loss. My ENT spec gave me an RX to fill if it strikes and it's the weekend or after hours as getting on top of it is key. Good luck to you.