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DiscussionHas anyone gone to Mayo Clinic to see a CFS specialist?
Visiting Mayo Clinic | Last Active: Sep 20 2:25pm | Replies (26)Comment receiving replies
Replies to "I have, thank you so much for your time and help. I am just really frustrated,..."
My daughter was diagnosed with CFS in 2012 after a viral infection. She is alot better now, not perfect, but it took years to get better, and some people do not. There is no real medical treatment other than learning to manage your life and hopefully in time you will improve. Some doctors view it as psychological and that is nonsense. I suggest you and your husband read as much as you can. I will send the site you might find helpful separately. I think its ME/CFS.
If Mayo Rochester accepted you as a patient and thinks they can help, I would travel there. You will receive the best possible work up and care.
I am a long covid sufferer and have CFS now and PEM. I can’t answer your question about Rochester but I am going to travel to Jacksonville for covid issues. May I ask who did you see there that diagnosed CFS? None my docs in home state are familiar with it. If I can get diagnosis in Jacksonville I will travel to see a specialist in Rochester.