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DiscussionBone marrow transplants for CMML
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Mar 13 9:34am | Replies (35)Comment receiving replies
Replies to "Lori, I live about 16 miles from the City of Hope. It looks like i will..."
I’ve tried several times over the past 5 years to initiate contact with my donor through Be The Match. He’s chosen to remain anonymous. During my initial recovery period I sent a little painting I did, along with a thank you note to let him know how grateful I was for his gift of life. I never heard anything back. So I may try one more time now that it’s coming up on 5 years the end of June. He owes me nothing but I owe him everything. ☺️ I’d really like to thank him in person or at least get to know more about him? Why he donated, etc.. and the fact that he’s a hero for me and my family.
It will be beneficial for you to find out the protocol for City of Hope and how they handle the stem cell procedure. It’s really great that you live so close! The first 2-4 weeks are the roughest so if you’re in the hospital during that time, that’s actually not a bad thing, especially if you don’t have a full time caregiver. You’ll be tended to nicely there and well taken care of.
Depending on the program, usually the pre-conditioning chemo is 5 days directly before transplant. For me the first 2 days were outpatient with little to no issue. Day 3-5 there’s an additional chemo added and that definitely let me know I was ‘not in Kansas anymore’. LOL. After that last session, there is usually a day of rest with just fluids being flushed through your system. Day 7 is called Day Zero and that is the transplant day. Totally anti-climactic event after all the hype! Takes about 15-30 minutes, looks just like a bag of plasma cells being infused just like a transfusion.
Having someone who can give you rides, help get groceries and such will be important the 2nd month. There can still be weakness and unpredictable days those first couple of months. So you may not feel like walking great distances if there is parking/walking involved. Just so you’re aware. I’m sure you’ll have meetings with a social worker and a transplant team to help you navigate what to expect.
You have a lovely and positive attitude about all of this! It is so beneficial to your health and recovery. ☺️