Hi Lori,
I just wanted to follow up with you my first infusion went well until the last 30 minutes and I started getting a headache, they gave me Tylenol and I left 30 minutes later. My pain became more severe and I had swelling by the time 1 am in the morning my husband called the after hours line and they said increase my pain medication (being it’s now the weekend) Sunday was ok and then when Monday rolled around the pain was back and a 10/10 spent 9 hours in the ER. My head and face is where my lymphoma is the most severe
I have my 2cd infusion tomorrow and I am praying it doesn’t happen again.
They did put me on steroids this week to hopefully counter act and will try and get the pain under control before I leave due to it being on a Friday.