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Bone marrow transplants for CMML

Caregivers | Last Active: Mar 13 9:34am | Replies (36)

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@katgob

Lori,
Yes the doctor yesterday said i am low/med in progression. But i told him i trust the scientists and doctors and their findings with my blood. I know all those years how high my platelet numbers were made my 98 # know something was wrong. The fact they were 140 and went down every time i got a blood test. My white cells were near 289 but never went up. My red cells are good. I was seeing the NP in my oncologists; office and she went on pregnancy leave in August of 2023. I saw someone else in September in the women's center but i did not have anyone who knew at what stage i was at or me. Two years of chemo's, other infusions and I felt lost. I did have the blood clot doctor and I decided to contact to ask them about seeing a hematology doctor. They called for me but it took a number of times for me to call to finally get the doctor assigned that i have now. In the portal, I noticed in the notes that after i saw him, and he got the results of the bone marrow biopsy, he emailed the top transplant doctor he works with and discussed it with him. Yesterday the dr was happy I did decide to do it. It is what they hoped i would do. I do not have MDS now. Getting a 25-year-old males' blood is like the young male you received. Young and hopefully a good product my body will accept. They are contacting the donor to see if April works for him. I believe a part of me is in disbelief that i have breast cancer, a double mastectomy and now this. Yet because of this is why i told the doctor i do not want to wait. My hair is barely to my shoulders and i still have one good wig and a whole lot of hats.

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Replies to "Lori, Yes the doctor yesterday said i am low/med in progression. But i told him i..."

I think you’re making a wise decision as well, at least from my perspective. It wasn’t a walk on the beach to go through the process of the transplant, but it was well worth it in the end. You’ll be getting a second chance at life, starting out with a new immune system.

I swear I have the energy of a 25 year old male. My donor was 20 at the time of transplant but we’ve grown older together for the past 5 years. LOL. I continue to have 100% his DNA and 0% of mine with my chimera tests and I did change blood types from B+ to his, which is O+. He must have been super healthy because I no longer have allergies to ragweed and no sensitivity to peanuts or almonds!

You have some major changes coming up in your life. Like I mentioned before, there are several of us in the forum who have gone through the allogenic stem cell transplant and we’re here for you any time.

You’ll most likely have a ton of questions as you get closer to April. Are you near the clinic where you’ll be having the transplant? Or will you have to relocate for the procedure and recovery?