I have stabbing, lightning, stinging, burning pains in feet that are excruciating. The neuro said at last visit, after nerve function studies that I have chronic severe nerve damage ; polyradiculopathy in lumbar and c spine which causes horrendous spasms in legs and the right side of my back (last area ; lumbosacral area and feet since 11/2021.

In the summer of 2023 I started to develop spasms in the traps pain in shoulders (one has ripped rotator cuff).

The flare I’m in has newer symptoms. I’ve been having now lightning like pain to surface of skin in bottoms of feet and edges. The starting symptoms back in 2021 is now happening in both shoulders: hands and wrists…shoulder pain with tingling and pains and some numb feeling sensations to some fingers I had pain and light swelling the the outside wrists in similar time frame.

I take now after calling neuro on call who. Said it doesn’t sound like polyradiculopathy and she doubled my lyrica to 150 in am and 150 in pm and prescribed a strong muscle relaxer. The thing is I think it helped the spasm in feet but It caused the back pains I have to become more severe so I went back to the baclofen which I tolerate. ‘

The neuro at last visit said per the nerve study I didn’t have long fiber neuropathy and the only way to diagnose small fiber neuropathy was via a biopsy. I didn’t ask for a biopsy because I didn’t think there is treatment for it. She was going to do a spinal tap then decided not and put me on a ridiculously restrictive unsustainable anti inflammatory diet. I followed best ability for a month, beyond that sorry I need to eat chicken. I can’t live only on fish and eliminate all other meats and severely eliminate some food groups!

How coud a biopsy to find small fiber neuropathy help in treatments? What kind of treatments are offered to help pain?

Pain Mamet gave me shots in back it helped wanted to do ablation or epidural which neuro didn’t think woud be good for my balance which is really effected (use a cane). Im and can’t see a future with this kind of pain. Who does the biopsy? Is it the neuro? Someone else? All I can say is I’’m not sure the lyrica is doing much. Does small fiber neuropathy cause the pain that is close to the surface of the skin? I tried to massage foot and pain shot through the area. The nerve study also showed neuropathy in one forearm but not in legs (large fiber). This visit maybe she will want another nerve study I don’t know. I just know this is not a life. If this keeps up I’ll need a wheelchair to get around. Came close to it last week. So I’m waiting for doctors visits to help. Maybe someone can diagnose cause of my polyradiculopathy that is bilateral. Something new for a few months now is when I burn hands under hot water the sensation runs down body through back of legs and feet instantly. It stays until I can apply cool water. THat is just weird to me. Does anyone have that and know what it is?