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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 9 9:21am | Replies (224)Comment receiving replies
I am 86 years old and recently diagnosed with Mycosis Fungoides. My dermatologist said I was in stage 1B
She suggested light therapy. Today, my insurance approved the treatment. My PCP has located a dermatologist who performs this treatment. I have scoured the internet trying to learn all I can about this disease. Let the adventure begin!
Replies to "I am 86 years old and recently diagnosed with Mycosis Fungoides. My dermatologist said I was..."
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Good morning @beeclee
My 33 yr old son was diagnosed in July with CTCL\MF and is receiving light therapy as well. It has been very good for him. We found a dermatologist close to our home who has been such a help to my son mentally and physically. Generally we travel to NYC to Sloan but now he doesn't have to go monthly but every 3 months. Less Stress. There is so much to know and read about this disease/Lymphoma don't stress yourself out.
Enjoy life, every second of it.
I hope your light therapy treatments are going well.