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Myasthenia Gravis brought on by Iron Infusion/possibly Covid

Autoimmune Diseases | Last Active: Feb 15 8:20am | Replies (11)
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@gmg35

Yes, I get ivig every four weeks. I also get plasmapheresis every eight weeks and my condition has stabilized finally. MG is no joke and a neuro that doesn’t treat MG won’t be any help. I nearly died in my first crisis before they finally transferred me to the large teaching university hospital a hundred miles away where I was finally diagnosed. And even there we had to try several treatments ( including one drug not approved at the time) before I could recover from crisis and stay recovered.

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Replies to "Yes, I get ivig every four weeks. I also get plasmapheresis every eight weeks and my..."
j77 | @j77 | Feb 14 10:14am

That is so scary.I am glad that you are doing better.I was so sick at the beginning of this I don't know how I made it.The worse part is the doctors not finding much of anything.It is like an invisible disease.I told my neurologist about my weakness in the diaphram/sternum area.I was trying to tell him that because that holds the belly down I just don't have it anymore.All my strength in that and the belly are absolutely gone.I just have to find a doctor that understands what I am talking about.Thankyou for letting me know about the IVIG infusions.I did not know anything about them until I started reading up on them.They treat alot of conditions.

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