← Return to Myasthenia Gravis brought on by Iron Infusion/possibly Covid

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Thankyou so much for responding!I think I must have MG or something close to it.We have so much Lupus on both sides of the Family I thought it may be that.I had to go to the ER several times for not be able to breathe or swallow,but all they found was extreme constipation.I think whatever disease this is is causing it though because at the beginning it was like my whole body stopped functioning.The only thing I can think of is that my body was so worn down from years of anemia from heavy periods that when I finally got the iron infusion and possibly covid my immune system went haywire.I remember years ago before I was diagnosed with Hashimito's it was a similar situation.My whole body shut down.I also have had a constant dry cough that came on months ago that won't go away.I don't know if that is part of MG.I was even looking at ALS,but my arms and legs are big and inflamed.When I walk it is like walking with cement legs and I think with ALS you lose alot of weight.At the beginning when I could not swallow I only weighed a little over 100 pounds and luckily my primary thought to give me steroids.That was the only thing that gave me the ability to eat again.I will have to find a neuromuscular doctor.The neurologist I am seeing is not that helpful and whatever I have is just not showing up on tests and I am not getting any better.Do you happen to get IVIG treatments?I was reading that those can sometimes help.

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Replies to "Thankyou so much for responding!I think I must have MG or something close to it.We have..."

Yes, I get ivig every four weeks. I also get plasmapheresis every eight weeks and my condition has stabilized finally. MG is no joke and a neuro that doesn’t treat MG won’t be any help. I nearly died in my first crisis before they finally transferred me to the large teaching university hospital a hundred miles away where I was finally diagnosed. And even there we had to try several treatments ( including one drug not approved at the time) before I could recover from crisis and stay recovered.

Plasmapheresis can also help especially if you fail IVIG.