← Return to High CA-19 4,500

Discussion

High CA-19 4,500

Pancreatic Cancer | Last Active: May 29 8:46am | Replies (25)

Comment receiving replies
@mnewland99

Pancan is a very challenging disease; it’s not for sissies! You’ve made it this far which shows your sense of courage and strength. I became diabetic after my distal surgery Oct. 2022. I lost a lot of weight trying to stick with the carb schedule until an 8 year survivor (stage 4) told mri worry about carbs later and eat what I want (within reason) and adjust the insulin accordingly. I was told the main goal now is to keep up the weight and strength. It worked! Too well I think sometimes cause now I wish I weighed just a little less. My cancer came back in Nov 2023 or else it really never was eradicated due to my 5 FU chemo. My ca19-9 rose to 3840 while drs looked for a visual of the cancer. I asked for chemo in the interim and my surgeon said “no surgeon in their right mind would give me chemo” at that point. They finally confirmed its presence via MRI and EUS. I’m on chemo again (aggressively 3 sessions on and 1 wk off), but on the gem-abraxane-cis combo and it’s working as my ca19-9 is at 550. Nausea is horrific now, but I’m sure I’ll find something out there eventually to help with it. I have 2 young adult college age children to live for (and a husband) and I ask for God’s help and give Him thanks constantly. I’m sure you have much to live for also and I dint know your beliefs and I hope I don’t offend them in any way, but I will be praying for you that you find the strength to be on the positive side of this nasty disease.

Jump to this post


Replies to "Pancan is a very challenging disease; it’s not for sissies! You’ve made it this far which..."

You did not offend me, I pray everyday for a cure. Sounds like you are doing great, I am afraid to take chemo again, going Friday to discuss options. No cancer shows up on tests, just c-19. I had my pancreas and spleen removed in November and I don’t think I have healed from that yet and haven’t got the diabetes under control. Have had days with 3 50’s and kicks my butt! How do you adjust the insulin? I am on a sliding scale and lantus 2 xmdaily. Thank you for sharing and prayers are being sent to you.