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Retroperitoneal Sarcoma options, sugery-radiation

Sarcoma | Last Active: Feb 25 4:53pm | Replies (9)

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@chaser77

Thanks for the reply. I’m one month out from diagnosis and waiting on pathology results that were sent to Mayo about Feb 2nd. Was told by physician here that the pathologist reviewing the slides is one of a handful of sarcoma experts in the country, so that’s reassuring. Was also told it could take another 1-2 weeks to get results. Oncologist submitted request for second opinion to Mayo last week. Haven’t heard back yet. Physically, I’m feeling great. Continue with my daily exercise routine and have just minimal symptoms. I went in a month ago because of some minor intermittent but chronic pain in right lower quadrant that I thought was a muscle tear/strain of some sort. Was quite surprised when imaging results came back! After recent PET scan reviewed, now getting an MRI too because tumor may be more involved in vertebrae than original CT imaging showed. Met with radiation oncologist too as was told RT is likely prior to surgery pending on pathology report. So for now I’m just waiting to get more information. It’s no one’s fault, but certainly frustrating that there is this huge tumor that is continuing to grow inside me over the past month and I don’t really have any more information than I did a month ago.

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Replies to "Thanks for the reply. I’m one month out from diagnosis and waiting on pathology results that..."

@chaser77, oh I can imagine that feeling of just wanting things to get moving. Get this thing out of me! Right? I get it. To offer some assurance, I can tell you that the time invested in reviewing all testing (imaging and labs, etc) is crucial to studying your tumor to create a treatment plan that has the highest likelihood of being effective. That was a long sentence to say - the more they know, the better for you.

Along with the Mayo pathologist, your second opinion referral and records will be reviewed by the expert sarcoma team at Mayo Clinic. I hope you hear more soon.

But, darn it. Waiting is really hard. Let me know when you learn more.