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Sjogrens and dysautononia and mast cell activation
Autoimmune Diseases | Last Active: Feb 14 1:52pm | Replies (18)Comment receiving replies
Facebook has several groups that may be of help- mast cell disorders forum has over 38000 members… there are other groups…just run a search on fb and you will find them…there is even one for POTS! There are lots of members in the UK. You may find info on medical resources in the UK.
Per these groups, Mayo Clinic has turned away MCAS patients, but will see mastocytosis patients,
https://www.mastattack.org/ Is also an excellent website…
Any chance you r taking B6 supplement that maybe causing neuropathy…
Replies to "Facebook has several groups that may be of help- mast cell disorders forum has over 38000..."
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Hi
Yes I am already on many groups just wanted to speak with others with the same presentation ...
Sjogrens and mcas causes small nerve fibre neuropathy. My B levels are normal and it's not diabetes . I'm looking for information really from those who have the same conditions to ideally share. I already know what I have.