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Retroperitoneal Sarcoma options, sugery-radiation

Sarcoma | Last Active: Feb 25 4:53pm | Replies (9)

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@colleenyoung

Hi @chaser77, you're right. Mayo Clinic doctors are respected for their expertise in diagnosing and treating sarcoma. You can submit a request for a second opinion at Mayo Clinic or your physician can submit a referral. Click this link to get started http://mayocl.in/1mtmR63

Mayo Clinic welcomes both new and existing patients for virtual and in-person care in adherence with federal and state executive orders and guidance.

Virtual care is available for out-of-state patients IF the provider you are seeing is licensed in the state where you live. Video and phone visits also can be great options for appointments before, after or in place of face-to-face care. Appointment coordinators will recommend a virtual visit if it best fits your individual needs.

I would call and inquire.

Have you received the pathology results in the meantime? How are you doing?

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Replies to "Hi @chaser77, you're right. Mayo Clinic doctors are respected for their expertise in diagnosing and treating..."

Thanks for the reply. I’m one month out from diagnosis and waiting on pathology results that were sent to Mayo about Feb 2nd. Was told by physician here that the pathologist reviewing the slides is one of a handful of sarcoma experts in the country, so that’s reassuring. Was also told it could take another 1-2 weeks to get results. Oncologist submitted request for second opinion to Mayo last week. Haven’t heard back yet. Physically, I’m feeling great. Continue with my daily exercise routine and have just minimal symptoms. I went in a month ago because of some minor intermittent but chronic pain in right lower quadrant that I thought was a muscle tear/strain of some sort. Was quite surprised when imaging results came back! After recent PET scan reviewed, now getting an MRI too because tumor may be more involved in vertebrae than original CT imaging showed. Met with radiation oncologist too as was told RT is likely prior to surgery pending on pathology report. So for now I’m just waiting to get more information. It’s no one’s fault, but certainly frustrating that there is this huge tumor that is continuing to grow inside me over the past month and I don’t really have any more information than I did a month ago.