@djmeis Hello, Deb. I wanted to welcome you since you are a new member here. What I'm wondering is if your body just doesn't like the materials and metals in your hardware? It's hard to know if that may be a source of your pain, and I do know that I have had pain from titanium plates on my ankle after a fracture. I had those plates removed which solved the problem. That may not be realistic for you to really consider removing spine hardware.

Another option may be looking to the field on environmental medicine for treatment. Immune reactions to surgical implants is a real problem for some patients.

Here is website for the practice that began this medical specialty and you can find some information about treatment.
https://www.ehcd.com/
I have seen an environmental medicine doctor for a number of years. You may be able to find another similar provider. This site has a provider search button in the top right. https://www.aaemonline.org/

Another suggestion would be myofascial release therapy to try to loosen surgical scar tissue which can also be a source of pain. Here is our discussion about MFR.

Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
I hope some of this can bring you some hope.
Jennifer