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Cervical Stenosis

Spine Health | Last Active: Mar 10, 2024 | Replies (45)

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@jenniferhunter

@rnlorena Thanks for the details from your imaging reports. There are a lot of significant findings there and anything flattening your spinal cord is not going to go away. The facet arthritis happens when discs start to collapse and it puts more pressure on those joints. The herniated discs cause inflammation that triggers bone spur growth. I would expect it to get worse for you, and it takes time to wait to see good surgeons. I agree that this doctor is brushing you off. There may be another reason he doesn't want to do surgery. I was refused surgery by 5 surgeons because they didn't understand how my symptoms were connected to the imaging and didn't want to risk their reputations on me. They want to keep their statistics of success and bragging rights higher and a potential poor outcome is a threat to that because they just didn't understand my case. I don't know if you have any other health issues that could affect a spine surgery outcome. They may want to cherry pick easy cases instead of multilevel involvement.

I came to Mayo with my imaging that had some mild cord compression at only one level, and no compression at the nerve roots (foramen), and that was a big enough problem that I was offered surgery right away. There were no games, and just an honest opinion about how surgery could help address my symptoms and at the time, I was loosing the coordination in may arms. When you have both spinal cord compression AND nerve root compression, you will get overlapping symptoms and they won't know specifically how to trace the pain. Spinal cord compression alone can cause pain all over the body anywhere below it that can seem to be random and changing. That is what I had that confused so many surgeons.

I would encourage you to find a better spine surgeon for another opinion. Coming to Mayo was the best choice I made for myself after striking out 5 times with local surgeons. The pain in your chest could also be spine related particularly if neck movement can generate it, and you are also right to ask for a diagnostic mammogram. Let the experts make the diagnosis because it's so easy to assume something and be wrong. If a spine surgeon isn't interested in you as a patient, move on for another opinion even it it means you have to travel to find the right specialist. It was worth it to me to drive 250 miles to Mayo, and many patients arrive there through the Rochester airport.

These doctors are just wasting your time, and you have the right to fire them. It took me 2 years jumping through hoops, but when I came to Mayo, only 2 days and I had an offer for surgery that was scheduled 5 weeks later. The wait to get into Mayo varies, and you need to have insurance they accept. I was expecting a 3 month wait, but there was a cancellation and I was at my first consultation 8 weeks after sending in my records and imaging.

Do you have another surgeon in mind for a second opinion? How do you want to proceed?
Jennifer

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Replies to "@rnlorena Thanks for the details from your imaging reports. There are a lot of significant findings..."

@jenniferhunter Sorry I was so wordy and still am. Well the orthopedist that I went to I will be going back to see him. He is an orthopedic surgeon. I can take him the discs and see what they have to say. I saw my eye Doctor regarding my cataracts. He use to be a neurologist but he is now an Ophthalmologist. He requested my neuro records from when I got diagnosed with small nerve fiber. He did answer a question before I asked it. I wondered how he would operate on cataracts knowing I had small nerve fiber and pin pricks in my eyes. He told me that I would have to be put to sleep versus them using a needle around my eyes so that is something to ask and think about if they want to give me some kind of a shot for back issues. I will look into Mayo for help. I have Medicare and Tricare for Life. When I was in England pain woke me up going down the side of my hip all the way down my leg. That's also when I had the pain in my upper chest. When I came home I bent over and had electrical pain go from my left hip down my leg but not all the way. When I sit I get pain in the back of my left thigh achy type. I also had it in my other thigh once. I also have been walking and it came in the front of my left leg and it went down my thigh and was like a disconnect at the knee and went down the lower leg. I have a disc and will get the other one for the MRI I had of my spine and will ask questions to see what the orthopedist has to say. I will check into Mayo for sure. I had an ultrasound of the abdomen done and I asked the tech about breast ultrasound and let me tell you she was great. She told me where to go to get a diagnostic mammogram and ultrasound done. I could not understand why the neurosurgeon said I had very little stenosis in my neck when the report stated that I did. He said that the stenosis would not have caused the pressure that I had. I will call Mayo in Florida and see what they tell me. I have lost a lot of trust in Doctors lately. I have seen some sitting Doctors. My definition of a sitting doctor is he sits there and talks to you then just listens to your heart and lungs. That is a sitting doctor. I have heard some things from Doctors that make no sense to me period. I have heard this from other people also. I am looking for an internal medicine doctor also. I did already fire two Doctors and I am fixing to fire a third. Thank you for the information and I will let you know what I find out. I am a determined woman I really am. The medical profession has gone down from what it used to be. I know they have good doctors out there I just need to find them. @rnlorena

Hello Jennifer,
The surgery performed at the Mayo Clinic by your surgeon, understand it was a neurosurgeon.
But the actual procedure, was it using the ultra-sonic tool or drill, etc.
Lastly, did you experience any of the symptoms I previously described, dizziness, out of balance ,etc. ?
I believe symptoms are being brought on by Cervical Stenosis ?

Thank You,