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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 1 day ago | Replies (793)
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@markgventnor

Thanks for the information. Great to share with others who been in the same situation.

I am looking to connect with someone who has/had a Synovial Sarcoma. I was operated in 2019 and had it removed. Because of the size, I was told it was large and could reoccur. Any information is appreciated.

Thanks,
Mark

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Replies to "Thanks for the information. Great to share with others who been in the same situation. I..."
casgarcia | @casgarcia | Feb 13 9:33am

My 44 year old son had a huge monophasic synovial sarcoma surgically removed in October 2022 followed by 6 weeks of daily radiation. He was followed with PET CT every 4 months. Negative in September 2023 but positive for a new tumor in his right axilla and left lung in January 2024. Chemotherapy was advised and started 2 weeks ago. This is a rate cancer, 1 to 3 per million, but very susceptible to chemotherapy. Hoping for the best. So far, so good. He is being treated in Merida, Yucatan, Mexico where costs are 30 to 70% less but the medical expertise is excellent and personal.

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