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Posting this in Reply to your comment in hopes it may be of some help...
"In reply to @roch "If you have not seen a specialist, I suggest you talk to someone about options. Mayo..." + (show)
Hope this isn't reaching back too far to you to respond to your Sept. 28, 2022 post.
I have just had laser ablation surgery (Feb. 8, 2024) and without going into specifics yet, wonder how your 'journey' with lichen sclerosus (LS) has been, as this has been with me for 40+ years, and has led to this current precancerous condition (VIN II/III) that necessitated this procedure, and must be followed every 6 months for 5 years. I've been following the LS condition regularly with each GYN I've had along the way, having lived in many locations across the country.
I read (in scientific journals that I can access, along with the NIH and Am. Can. Socy sites), that it has a high recurrence rate (the VIN level) - of up to 75% - even within the first year after the first procedure. LS is a life-long condition, very poorly known in the general population (esp. among women), and yet can lead to this serious state of being precancerous. Obviously I hope it doesn't ever go beyond being precancerous.
Hope all is well."
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@brandysparks
In response to your question, I am still struggling controlling my lichen sclerosus (LS). This is partially my own fault, I am not consistent with the medication, Clobetasol Propionate. I had flare up few months ago and went in for recheck. Was scared it had progressed to something else. First, it took months to get an appt with gyn provider. Like most speciatitis, it is hard to get appt. When finally got into to see someone, she confirmed it was LS flare up and told me to increase ointment for few months.
I think LS is under diagnosed. My primary stopped doing pelvic exams years ago and when I asked specifically about a problem, he missed the LS. I self-referred myself to gynecology dept and glad I did. Now I do yearly gyn appts.
Most women have no idea what it is or results of untreated LS.
Hope treatment goes well for you.
laurie