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Replies to "@cwitton I am so sorry you are going through this. I just finished dealing with a..."
You are strong for telling us. We need to listen. Thank you and I can absolutely relate-I am so sorry!!
I have straddled the elusive doctor- monster with my daughter, myself, and with my own career in practice!! Mono does terrifying things. What is more terrifying is a doctor who doesn’t care. For myself practicing in medicine, it’s gut wrenching to work with professionals lacking passion for seeking answers. The medical community should NOT harbor pride WHEN we do not know. Not if, but when. We need to practice, refer, research and apply- finish our jobs!!
To all the medical professionals reading this;
Let it sheds light that we never stop learning. We are never above someone else.
You have my support!!! I am sorry and I hope you find relief SOON!! ❤️
Like your stage 3 CKD, my friend and my brother in law both had an obvious abnormality on bloodwork that indicated possible leukemia, one for 2 years, one for 3 months, that was totally overlooked or ignored by their multiple Drs. I discovered my BILs problem while reviewing his patient portal. He is now referred to a hematologist and friend has been diagnosed with leukemia. I can’t tell you how often this happens! I encourage everyone to get copies of their lab and test results or sign up for the patient portal and check your own results. You may need help interpreting or need to research, but you’ll learn more about your health than you’ll learn from your Dr. unfortunately our health care system is stretched so thin that HCP don’t have time to explain so they may not even mention important things.
Get a medical dictionary and lab book and look for hi or low “flags” on lab results. Some borderline values may not be meaningful, but bigger discrepancies outside normal reference ranges should be questioned.
We must take a more active role in partnering with our HCPs to help ourselves live our best!