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Tired of the gaslighting

Autoimmune Diseases | Last Active: Apr 30 10:33pm | Replies (189)

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@suzzee3

@cwitton
I am so sorry you are going through this. I just finished dealing with a Doctor that is a freaking Moran. I had been seeing him at this time about 2 years and I went in for a follow-up and bloodwork results. So we're sitting there and he says " Your kidneys look good this time." I say what do you mean this time. He has the nerve to say well you've had kidney stage 3a for a couple of year's. I was really mad and asked him why in the f*** did you never tell me or send e to a specialist? There's more but I don't want to blow the page up. I had finally had enough of his shit and kicked him to the curb. I reported him to the head guy and he is still there treating patients. We are getting a lawyer because there is way more. He has caused me percent injuries to my ankles that is now also affecting my toes. I had a serious infection that I got in an aftercare and I kept telling him what kind of tests I needed done...never to get them. I was so sick I couldn't get out of bed. Thank God for the Gastro Doctor I asked to be referred too. She found the infection in 3 weeks. I have lost so much faith in Doctor's and the ER is a joke. I pray you get some relief. Look into some holistic stuff. I have found some with a little research to help a few of my autoimmune problems.

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Replies to "@cwitton I am so sorry you are going through this. I just finished dealing with a..."

Like your stage 3 CKD, my friend and my brother in law both had an obvious abnormality on bloodwork that indicated possible leukemia, one for 2 years, one for 3 months, that was totally overlooked or ignored by their multiple Drs. I discovered my BILs problem while reviewing his patient portal. He is now referred to a hematologist and friend has been diagnosed with leukemia. I can’t tell you how often this happens! I encourage everyone to get copies of their lab and test results or sign up for the patient portal and check your own results. You may need help interpreting or need to research, but you’ll learn more about your health than you’ll learn from your Dr. unfortunately our health care system is stretched so thin that HCP don’t have time to explain so they may not even mention important things.
Get a medical dictionary and lab book and look for hi or low “flags” on lab results. Some borderline values may not be meaningful, but bigger discrepancies outside normal reference ranges should be questioned.
We must take a more active role in partnering with our HCPs to help ourselves live our best!

You are strong for telling us. We need to listen. Thank you and I can absolutely relate-I am so sorry!!
I have straddled the elusive doctor- monster with my daughter, myself, and with my own career in practice!! Mono does terrifying things. What is more terrifying is a doctor who doesn’t care. For myself practicing in medicine, it’s gut wrenching to work with professionals lacking passion for seeking answers. The medical community should NOT harbor pride WHEN we do not know. Not if, but when. We need to practice, refer, research and apply- finish our jobs!!
To all the medical professionals reading this;
Let it sheds light that we never stop learning. We are never above someone else.

You have my support!!! I am sorry and I hope you find relief SOON!! ❤️