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Stage 1 Bladder Cancer/Gemcitabine

Bladder Cancer | Last Active: Mar 9 9:27am | Replies (39)

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@cstrate

Colleen I made the 11.5 hr trip yesterday after talking to Steph in oncology. I have been in excuriating and debilitating pain for over six weeks and finally begged enough to get an MRI on hip and pelvic, results referred me to Mayo. Went to ER early Sat morning and had devastating news that my high grade, highly aggressive and invasive bladder cancer was not contained or stage 1, it has metastasized and I now have bone cancer, thanks to medical negligence in Michigan, where care lacked and symptoms ignored for 5.5 months. The cancer is in my hips, pelvis and legs with multiple fractures in hips and pelvis and deteriorated tibia. The speed and care in the ER was phenomenal and had answers to my pain and loss of mobility in a little over an hr. Under the advise of ER doctors, with Steph and ER doctors advocating for me to get in asap, we stayed in Rochester across from hospital in hopes of getting seen by oncology tomorrow, Monday 2/12. We will call at 8am sharp, praying for care and healing.

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Replies to "Colleen I made the 11.5 hr trip yesterday after talking to Steph in oncology. I have..."

Fingers crossed. If you need help navigating the campus, there is a free Concierge Service.
Mayo Clinic Concierge Services
https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services
In person: Concierge Services desk
Mayo Building (lobby level, in the International Center)
Monday-Friday: 8 a.m. to 5 p.m.
No appointment necessary
By phone 7 a.m. to 6 p.m., Monday-Friday: 507-538-8438
Email: concierge@mayo.edu

Ask them about the Checker system too.
- How does the Checker process work at Mayo Clinic?
https://connect.mayoclinic.org/discussion/checker-process/

My prayers are with you brother I am in gray area am having bad hip pain had clear cystoscope and PSA 2.9