@debbieguk Good morning or maybe it’s evening for you! Welcome to Mayo Clinic Connect. We’re a large group of caregivers and patients who all work together to help everyone reach their best outcomes. Here are 2 discussions to get you going. And there are lots more!
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/&
https://connect.mayoclinic.org/discussion/mast-cell-activation/
I found these discussion groups that you may want to look at and ask questions.
Since you went to Mayo, you must have access to their portal where you can ask questions. Did the doctors at Mayo Clinic give you a plan of care to share with your doctors in England?
Also, there is a branch of Mayo Clinic in London.
https://www.mayoclinichealthcare.co.uk/
Please look through the discussions and ask all your questions!