Wow so sorry for what you are going through,, I thought mine was bad but as I read yours I am getting a better understanding of just how bad these obstructions are and much more common.. My CTs for years since I had surgeries for the cancer in my colon, always show colonic fluid, distended colon blah blah and no one seems there was a problem but me, First I am told I have more malignant tumors, then they cant find it , then I have gastritis , take these pills, finally GI listens to me after I tell him I get full so fast eating a morsel of something I am stuffed things dont move fast through me , I am always bloated,, finally does a pancreas test, my pancreas isn;t working ,,,puts me on creaon , I just started that...,, then here I am finally comes to head the obstruction., so now I am waiting on seeing a new surgeon,. My surgeon of 9 years who did my original colectomies etc,,, and a hernia repair from one oversaw me in the hospital now doesnt want to deal with me,, so I am now thinking is he not qualified to or confident to treat,,,, Who is taking care of you and what are they doing,, I know how you feel and it is rotten, I read somewhere that Drs are starting to use a metal stent to open narrowed intestines which is what mine shows with strictures, ??? I am in my journey now to find a fix,, Id prefer to avoid and invasive surgery ,,,, I wish you well , I hate saying hang in there,, but do more research.,,don;t give up!!!! Best wishes!!!
The doctors are evasive because we can’t be fixed. From what I understand, we just have to live with it until there is an emergent situation.
Where do you live? If it is a smaller town like Reno, perhaps you should be seem by the Mayo or Cleveland Clinic. My insurance only will let me go to Utah so I did. The surgeon there said in an emergency, the6 could fly me in for surgery. I woke up this morning and still have a fever.