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Today's world is full of stressful situations. I am retired, had 2 liver transplants so far caused from a rare version of Hep C. Took years to find a med to cure it. Discovered our son had a rare disability with a disease called Neman Pick C, a fat process problem, when he was a senior in high school. He continues to live with us as an adult. I feel at times I feel like I am tied up in a tight ball ready to explode. I think about end of life at times and worry about bring a burden to my family. I have already faced death twice, three times if you include a major surgery a few months before my first transplant to stop internal bleeding in my stomach that started suddenly. I worry about my son's care after I pass and his mom passes. We doing ok financially but I think about how a crisis can cause financial drain too. Now my wife is having beast exams because of a small spot they found. A few years ago I also diagnosed with SFN in my feet and they hurt as well as my legs at times. I love to walk places so now what? Life can really sucks at times. Over the past 24 years with dealing with my transplants and 15 years with our son's illness, I wish I could just disappear at times to a beach or mountain for a month. I have spoken to many doctors because of my organ transplants require you to be mentally stable so you don't intentionally harm yourself. Otherwise they will give the gift of life to another patient. This, added to my job as a professional in Information Technology field requiring many extra efforts and hours. I used to run Little League teams and a YMCA group for kids. Now it's more humdrum and I feel like I am wasting away. Stress impacts a person wheather they are real busy to being idle.
Replies to "Today's world is full of stressful situations. I am retired, had 2 liver transplants so far..."
I am so sorry you are going through this. It does seem like a lot. Is there anyone you can trust to set up a trust fund for your son? I never heard of your son's illness so I am going to look it up. I also had Hep C but mine was due to drug use 34 years ago now. Thank God for Harvani. That's what I took after I did interferon 4 different times. Don't know how I survived that. There is absolutely nothing wrong for you to get away for a couple weeks. Take a break. I made my husband take a 4 week trip back to Georgia to visit his Mom, sister and other family. He took care of me years ago through my 4th interferon bout before we were married and in 2022 I broke both my ankles and he took good care of me. While in the aftercare waiting to be sent to Loma Linda for my ankle surgery I got something called C DIFF...what a nightmare that has been. The aftercare was filthy. You get it from to many antibiotic use or a dirty aftercare/hospital. I am in the hospital at this moment with my 3rd bout of that crap. There is a cure and my Gastro Doctor is dragging her damn feet. The Doctor here in the hospital is awesome. He said he is gonna set me up to get the cure. Anyway, take a little getaway if you are able to. I don't know if your son can travel until I look up his illness. Maybe you all can get away. I hope things get easier for you. I will keep you in my prayers.
Today. Make that plan to go to the mountains. You need and deserve it.
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I am so sorry this is happening to you. “They” say you get no more than you can handle, and I think you’re incredibly strong. You are also blessed to still be here to inspire others. Have you tried meditation? I thought it was a bunch of nonsense but it does work. For a little while you can be wherever you feel calmest. You deserve that.
Wishing you peace