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Side effects of Arikayce

MAC & Bronchiectasis | Last Active: Aug 19 10:24am | Replies (40)

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@pamly

Hello!
I’ve had a similar experience on Arikayce with a hoarse voice that comes and goes, and rarely sounds like the real me. I also sometimes have coughing fits while inhaling it, but not always. For me, Albuterol did the opposite of what it was supposed to do, so I quit taking it. I am just working through it the best I can.
I thought I’d mention that I was at the ENT recently for a different reason and mentioned the hoarseness because it was a particularly long and severe episode. He took a look with a scope and did not see anything irregular. One of the things he was looking for was white patches which could indicate fungal activity that may have occurred from the antibiotics killing good bacteria as well as bad, thereby creating an environment where the fungus could grow. I did not have any white patches so I don’t know what next steps would have been.
As a side note, I mentioned the hoarseness to my Arikayce coach. She suggested gargling with warm (not hot) salt water after nebulizing. It seems to be helping, but time will tell.
Best wishes to you on your journey.

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Replies to "Hello! I’ve had a similar experience on Arikayce with a hoarse voice that comes and goes,..."

I have been on arikayce for 5 months. Got through the horsness but now I have trouble catching my breath so much so that I have to sit down as it is hard to breath. This happens a few times a day and a little scary at times. Has anyone else been through this?

Thanks, Pamly for your comments on 2.12 which I found very helpful and comforting knowing I'm not alone. The voice changes are worse and the white patches on my vocal cords still continue. It was improving with fungal med but never cleared up. Seeing ENT again next Monday.
Waiting for ID Doc and Pulm Doc to review tests and make a final decision about an early Holiday from Arikayce. Have not been consistent with gargling with warm water but will try harder....Now I have dental issues to add to the party.