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MAC & Bronchiectasis | Last Active: Aug 19 10:24am | Replies (40)
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Replies to "Hello! I’ve had a similar experience on Arikayce with a hoarse voice that comes and goes,..."
Thanks, Pamly for your comments on 2.12 which I found very helpful and comforting knowing I'm not alone. The voice changes are worse and the white patches on my vocal cords still continue. It was improving with fungal med but never cleared up. Seeing ENT again next Monday.
Waiting for ID Doc and Pulm Doc to review tests and make a final decision about an early Holiday from Arikayce. Have not been consistent with gargling with warm water but will try harder....Now I have dental issues to add to the party.
I have been on arikayce for 5 months. Got through the horsness but now I have trouble catching my breath so much so that I have to sit down as it is hard to breath. This happens a few times a day and a little scary at times. Has anyone else been through this?