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Neuroendocrine Tumors (NETs) | Last Active: Mar 3 5:57am | Replies (26)
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@ekri, good to hear that the surgery was able to have clear margins. You're asking good questions. You may be interested in this related discussion:
- FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer
https://connect.mayoclinic.org/discussion/fdg-pet-scan-vs-68ga-dotatate-pet-scan-for-neuroendocrine-cancer/
I'm also tagging other members like @marieritzman @gesmone1 @ce1b @gmapam who have experience with atypical lung carcinoid.
Has your sister spoken with her oncologist in the meantime to discuss the results of her testing and NETPET score? How is she recovery from surgery?
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She is still in the hospital but generally recovering well. Her oncologist said we need to wait for biopsy report and can't say anything further at the moment. If report doesn't show lymph node involvement then things should be fine. I don't know if they just say this to be reassuring.