Bone Coach - How do you know it works?

Posted by sheilad1 @sheilad1, Dec 13, 2022

I have seen several people here joined Bone Coach. How do you know your osteoperosis is better. The testimonials talk about general health improving which adherence to any healthy diet may have done the same.
There is no science shown. It's pricey but worth it if it works.

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@rockmom65

Also, after the 4.5 years on fosamax, did you get off completely? I’m 58 and go results from my first bone scan last week. the average on my spine scan was -3.3. At one vertebrae-3.8. Pretty severe for my age. I’m a very anrhletic person and run, bike, hike. No back pain. Pretty scared. Doing lots of research right now.

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I got diagnosed at 58 and now at 73 am using medication for the first time. I will get my first scan after starting Tymlos next month. My scores were no better than that and my wrist was my worst. They have gotten worse over the last couple of years; my hips are the least affected, -3.3 and -3.7. I am due to have one replaced soon, due to arthritis. However, I have no fractures, even in my spine, (-4.9), so I have been lucky and there is more to bone strength than just density. There are much better treatments available now then there were when I was first diagnosed so I hope you will soon be reassured.

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I went through the free one-week program and decided not to get involved. Most of what these folks are doing I am already doing and working with people that care about me and results. So much if what is out there, drugs included, is based on scare tactics.

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@mannism

I went through the free one-week program and decided not to get involved. Most of what these folks are doing I am already doing and working with people that care about me and results. So much if what is out there, drugs included, is based on scare tactics.

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I did the same thing and came up with similar conclusions.

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@cpd54

Whose podcasts?

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The Bone Coach, Kevin Ellis. Podcasts and YouTube videos available.

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@imay

I got diagnosed at 58 and now at 73 am using medication for the first time. I will get my first scan after starting Tymlos next month. My scores were no better than that and my wrist was my worst. They have gotten worse over the last couple of years; my hips are the least affected, -3.3 and -3.7. I am due to have one replaced soon, due to arthritis. However, I have no fractures, even in my spine, (-4.9), so I have been lucky and there is more to bone strength than just density. There are much better treatments available now then there were when I was first diagnosed so I hope you will soon be reassured.

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You are a real testimony to bone integrity! My T score is -3.5. I was training for a hike last summer and took a couple of tumbles in the Rocky Mountains. I hadn't been diagnosed yet, but nothing broke or compressed and I feel relieved about that. I'm not counting on it, but my bone strength does give me some hope. Which medicine did you decide to take, if you are willing to share that?

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@babs10

You are a real testimony to bone integrity! My T score is -3.5. I was training for a hike last summer and took a couple of tumbles in the Rocky Mountains. I hadn't been diagnosed yet, but nothing broke or compressed and I feel relieved about that. I'm not counting on it, but my bone strength does give me some hope. Which medicine did you decide to take, if you are willing to share that?

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I have been using Tymlos for 7 months. I just had a scan, although the bone clinic here did not do one before I started and usually does not do on before you have been on it for year. However, I have heard that the largest gains are made in the first months of use. The scan showed slight improvements in my wrist and lumbar spine over the last scan two years ago, but my hip was slightly worse. It could have gotten worse still after the previous scan and improved after all but we have no way of knowing. Two of my liver enzymes are elevated; it seems that is not unusual for ATP but I haven't found anything mentioning AST. Still, Tymlos seems to be a little more effective than Forteo, and possibly safer than Evenity, which substantially increases the risk of major cardiac events in some people. It does preserve old bone as well as help build new bone, but not in the same way that bisphosphonates do.

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Shoot!

Still (for me anyway), the main hope is to not fracture regardless of the numbers and my bones (and yours) seem to be holding up even with the low density.

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@imay

I have been using Tymlos for 7 months. I just had a scan, although the bone clinic here did not do one before I started and usually does not do on before you have been on it for year. However, I have heard that the largest gains are made in the first months of use. The scan showed slight improvements in my wrist and lumbar spine over the last scan two years ago, but my hip was slightly worse. It could have gotten worse still after the previous scan and improved after all but we have no way of knowing. Two of my liver enzymes are elevated; it seems that is not unusual for ATP but I haven't found anything mentioning AST. Still, Tymlos seems to be a little more effective than Forteo, and possibly safer than Evenity, which substantially increases the risk of major cardiac events in some people. It does preserve old bone as well as help build new bone, but not in the same way that bisphosphonates do.

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What kind of scans are you getting done that checks the density or the fragility of your wrist?

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@fessenbeck65

What kind of scans are you getting done that checks the density or the fragility of your wrist?

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Just a DEXA scan. I don't know what other technologies may be available here in W. CO. I have had all of the relevant blood and urine tests. I am not sure how I would be handling my osteoporosis if I didn't have what they call "End stage" osteoarthritis in my right hip. It is painful and limiting and increases my risk of falling, probably even more than does my cat when he appears out of nowhere and snakes around my ankles. The less active I can be, the weaker my muscles and bones get, and I may have reached a tipping point where the dangers of doing nothing exceed the dangers of the available treatments. (I don't trust Big Pharma or their data, but I have seen plenty of dubious claims and programs on You Tube. I think that the anabolic treatments are scary, but that bisphosphonates were a bad idea to begin with and oversold anyway.)

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@lynnhaz

@barbakp @sueinmn Id like to respond to the idea that the Bone Coach is a "scam". I am enrolled in this program and have to say that I am concerned that you would immediately draw a conclusion without knowing more about the program and what it offers. It is an extremely well researched, professional and extensive program with 5 coaches, 3 of them PhD's, one nutritionist and a Nurse Practitioner/Functional Medicine Practitioner who has been working with women for over 30 years in womens health, menapause, osteoporosis, teaches at the Functional Medicine Institute and has written books, hundreds of articles, etc.
These "coaches" are women who have thriving businesses along with their contributions to the Bone Coach Program and are highly educated in the field of osteoporosis. One part of the program alone offers 6 1-hour live Zoom calls a week with the different coaches (womens health, nutrition, stress management, exercise), and access to close to a thousand past recordings (lifetime access). That is in addition to the extensive step by step process that Kevin takes you through, so you don't get overwhelmed with the amount of information they offer.
The program is designed around identifying the causes for you specifically (ie is it estrogen, is it nutritional, is it absorption), The other target areas are Nutrition, Exercise, and Managing stress (which is closely tied to absorption as cortisol inhibits absorption of vitamins, minerals, etc) They recommend you have a: Primary Care Physician, a Functional Medicine Doctor, and an Endocrinologist on board.
With regards to marketing, Im not entirely sure why you would criticize someone for marketing their product, as anyone who wants a successful business will market their product. If anything, Kevin doesn't market it enough, as you don't really understand by looking at his website the enormous amount of information and support you get in this program. I believe he holds back because he has put so much content in his program that he does not want it stolen. And lastly, regarding cost of the program, why would that be a negative, to charge for what you get in the Bone Coach, lifetime access to all of the content...not just the Zoom calls but all of the nutrition, testing, exercises, etc.
We dont criticize anyone for hiring a Physical Therapist, a Nutritionist, a Personal Trainer, a membership at a gym. You have to pay for all of that, why is it a "scam" to pay for the extensive expertise of all of these people? The program consolidates it all together so you dont have to piecemeal your recovery plan. With all due respect I think your judgement that it is a scam is unfair.

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In reply to lynnhaz, maybe you can answer my question asked a few months ago directly to that company Bone Coach about the cost of their program. A the time I would have like to investigate all the avenues available to treat osteoporosis. Unfortunately what I received from it was promotion after promotion but no idea of what it was going to cost me. So not having any answers I decided to abandon my research about it. I have received multiple emails enticing me again to join their program but without receiving an answer about its cost. Why must it be such a surprise?

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