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Update: Lutethera treatment is over

Neuroendocrine Tumors (NETs) | Last Active: Feb 21 1:13pm | Replies (25)
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@colleenyoung

@kc43, the liver is an amazing organ. I'm glad to hear that it has recovered 70% of its former self. It sounds like your doctor is monitoring your health closely and that stopping chemo, at least for a period of time, is advisable. Are you comfortable with that decision? Have you stopped yet? How are you doing?

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Replies to "@kc43, the liver is an amazing organ. I'm glad to hear that it has recovered 70%..."
KC | @kc43 | Feb 14 2:50pm

I was surprised to find out from my net specialist that his patients don’t use the Cap/Tem chemo for longer than two years due to bone marrow issues that occur with long-term use. I’m wanting to know what others have tried once the tumors start growing again.

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