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Parkinsonism

Brain & Nervous System | Last Active: Aug 7 1:47pm | Replies (71)

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@louiem777

Hello Everyone,

I was diagnosed with PD in Nov 2023. I am trying to do as much research as I can about PD and Parkinsonism and I found myself here. I just joined and I wanted to say hello.

LouieM

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Replies to "Hello Everyone, I was diagnosed with PD in Nov 2023. I am trying to do as..."

@louiem777
Hello Louie and welcome to the PD support group on Mayo Connect. I'm glad that you found this forum. This is certainly a recent diagnosis for you, and I really applaud you for your desire to learn as much as you can! Education about a new diagnosis such as PD will help you to take positive steps towards a feeling of being in control.

As you are wanting to learn more, I'd encourage you to visit The Davis Phinney Foundation website. Here is a link,
--Davis Phinney Foundation
https://davisphinneyfoundation.org/
Under the "Resources" tab you will find a great collection of videos about PD that are presented by both doctors as well as PD patients and sometimes, doctors who are also PD patients!

As you undoubtedly know, exercise is one of the best adjuncts for keeping PD disability under control. Most of us who exercise on a regular basis tend to have better outcomes. I always say that PD is not a disorder that you can "take laying down." There are many free, videos on YouTube with PD exercises that can help. There is also physical therapists who are specially trained in PD therapy.

If you want to go to in-person classes, there are Rock Steady Boxing, Dancing for Parkinsons and Pedaling for Parkinson's (done on a stationery exercise bike). Exercise in whatever way you really enjoy, in this way you will most likely be more inclined to be faithful to the program.

When I was first diagnosed with PD, I was having problems with gait (veering to one side when I walked, especially later in the day when I was tired). I also had balance and voice issues.

As you are new to this forum, please share (as you are comfortable doing so), what symptoms led to your PD diagnosis. How are you feeling now?

Exercise, exercise, exercise. Do Chi Tai. Start from Beginners. I have heard Focused Ultrasound is good for tremors.