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NET not found on PET/CT

Neuroendocrine Tumors (NETs) | Last Active: May 4 9:38pm | Replies (14)

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@pavlina60

Dear pippa05, have you had GaDotatate PET scan? It is very useful for NET diagnosis, especially for secreting tumours, as they have the necessary receptors for the GaDotatate. You may want to discuss it with your oncologist. My tumour was functioning and secreting, so I had some elevated tumour markers (Chromogranin A, CA 19-9, CEA antigen). Good luck! You got this! 💜🦓

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Replies to "Dear pippa05, have you had GaDotatate PET scan? It is very useful for NET diagnosis, especially..."

Ditto to @pavlina60, you got this, and any other questions we can try to help you, please ask, there are many of us that gone done that path, and hopefully can assist you in this fight. We got u, and you got this!