Connect
Comment receiving replies
Hello @michigan84,
Yes, your experience will be helpful to others. When we have other members post about this devastating disorder, I would like to invite you to share your experience with them.
You are to be applauded for making the necessary adjustments to accommodate your wife's needs as well as your own. It looks as if you realized the importance of caring for yourself and yet keeping your wife safe. That is very important for full time caregivers. We all need time to ourselves in order to re-group.
I get the impression that your wife passed away recently. Is that the case? As you are new to Mayo Connect, perhaps you might be interested in posting in another discussion group,
--Loss and Grief in Caregiving
https://connect.mayoclinic.org/discussion/loss-and-grief-in-caregiving/?commentsorder=newest#chv4-comment-stream-header
The first post by @IndianaScott is very helpful as he tries to explain his many emotions after the death of his wife after being her primary caregiver for many years.
Just wondering if you are feeling similar to Scott's about loss after caregiving.
Replies to "Hello @michigan84, Yes, your experience will be helpful to others. When we have other members post..."
Connect
My wife Diane died in the morning of January 2016 from the combined effects of PPA and PSP with myself and my daughter from California present. By then. Diane was no longer responsive and it was a relief to know that she was no longer suffering. That was 8 years ago, but it is still fresh in my mind. She led a life of helping others so it was not only a loss to me and my family.
I have recently updated my profile on Mayo and made much more available to the public, You might find some surprises there
All the best, Roland