Replies to I get the hopeful/hopeless pendulum! I have been long covid 4yrs progressive. I have long list…

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Post-COVID Recovery & COVID-19 | Last Active: Feb 21 6:15pm | Replies (26)

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@bettyjackson

I get the hopeful/hopeless pendulum! I have been long covid 4yrs progressive. I have long list of symptoms in common with so many of you, but I am blessed that my heart&lungs function and I am not bedridden . My husband is a stroke survivor & doesn't really comprehend why I can't just do what I've always done, but he is supportive....my whole family too. Spent a week @ MayoClinic 1yr ago, all testing normal of course.....in common with most of you. But I did get insight about "Central Sensitization " and coping longterm. No cure YET, but
Stay strong!! Stay encouraged! The whole scientific world knows and validates us finally!!!

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Replies to "I get the hopeful/hopeless pendulum! I have been long covid 4yrs progressive. I have long list..."

dloos | @dloos | Feb 10 11:27am

Thank you Betty,
I try, try, try every day to stay positive. My issues are mostly in my head with tinnitus and hyperacusis along with hearing loss. It’s a weird stew of symptoms that nobody really understands. My vision is also foggy and of course all of this affects my thinking. I do believe Central Sensitization is at play here. I finally have good doctors and hearing specialists working with me. My family props me up.
I struggle on.

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