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Teresa,
Thank you for your communication. I'm sorry to tell you that there were no therapies that were helpful to her. She suffered from PPA and PSP, both progressive brain diseases that eventually lead to death, in her case about two years after diagnosis. I was retired and able to be with her for much of the day. We were able to find assisted living facilities where we able to live together in the same apartment. As her caretaker, I was able to get away for afternoon walks, knowing that she was safe while I was gone.
This has been a rather long detour from your question, but I thought that our experience might be helpful to others. If so, I would be happy to expand on the topic.
Her diagnosis of parkinsonism was of little importance since her other problem dominated her life.
Replies to "Teresa, Thank you for your communication. I'm sorry to tell you that there were no therapies..."
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Hello @michigan84,
Yes, your experience will be helpful to others. When we have other members post about this devastating disorder, I would like to invite you to share your experience with them.
You are to be applauded for making the necessary adjustments to accommodate your wife's needs as well as your own. It looks as if you realized the importance of caring for yourself and yet keeping your wife safe. That is very important for full time caregivers. We all need time to ourselves in order to re-group.
I get the impression that your wife passed away recently. Is that the case? As you are new to Mayo Connect, perhaps you might be interested in posting in another discussion group,
--Loss and Grief in Caregiving
https://connect.mayoclinic.org/discussion/loss-and-grief-in-caregiving/?commentsorder=newest#chv4-comment-stream-header
The first post by @IndianaScott is very helpful as he tries to explain his many emotions after the death of his wife after being her primary caregiver for many years.
Just wondering if you are feeling similar to Scott's about loss after caregiving.