← Return to DCIS Negative ER/PR - What tests can be done to monitor reoccurence?

Discussion

DCIS Negative ER/PR - What tests can be done to monitor reoccurence?

Breast Cancer | Last Active: Feb 10 2:03pm | Replies (12)
Comment receiving replies
@windyshores

Just want to mention that the original poster, @gillbell84, had a double mastectomy so imaging of breasts isn't relevant. And a triple negative diagnosis which means no aromatase inhibitors or tamoxifen.

I also had a double mastectomy and my docs don't do blood work or scans. In fact they don't even see me after 5 years. There is really no way to know about metastasis at present. People often tend to find out during testing or scans for another problem.

@gillbell84 what kinds of monitoring did you have in mind? Just curious. For some reason, approaching the 10 year mark is making me nervous.

Jump to this post

Replies to "Just want to mention that the original poster, @gillbell84, had a double mastectomy so imaging of..."
gillbell84 | @gillbell84 | Feb 10 1:47pm

Thanks for sharing - I am double negative DCIS (ER/PR negative) which is less common so less research out there - they don’t test for HER2 when it’s DCIS. I’ve asked about ultrasound and bloods but just not sure they offer this for DCIS - I think it may come down to the rate of recurrence is so low and MRI is not considered medically necessary so insurance won’t cover it. I’m waiting to discuss ultrasound though. I just don’t feel confident that a physical check is enough.

VIEW AND REPLY