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My husband, Jim, was informed that he was high risk even though the surgeon said that he was intermediate. What is involved in getting the decipher test? He is dead set on not getting any hormone treatment. They are recommending 18 months of Eligard. He is having the spacer surgery on 3-14-24 and doing the CT and MRI scans on 3-15-24. I presume the Proton Beam therapy will begin the following week. Originally, he was going to do the RP but surgeon said that he had a larger prostate and he couldn't guarantee that he wouldn't be totally incontinent. I think that this terrifies him more than anything as well as the hormone treatment. He is afraid of the side effects that could happen like stroke and heart attack ETC.
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marlow2, there is a pill form of ADT called Orgovyx. The recovery after quitting the drug is said to be much faster than the injectibles. Your husband may be more receptive to it. The advantage and disadvantage is that a person might have to decide everyday if they are going to take it. Shrinking the tumor would increase his chances for continence and keep him safer during the wait until March.
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Hi marlow2,
I’ve taken the Lupron shots every 3 months for 2-1/4 years. Currently on a 9 month break however PSA has risen from 0.02 to 0.04 (prior to treatment 20.0) and testosterone risen from < 12ng to 41. I am concerned about testosterone increase as it is (in my mind, I am NOT a physician) the miracle grow that mutates the prostate cancer cells into the most aggressive prostate cancer cells that “getcha!”. So I see the OncologyNP on 2/12/24 and I am going to advocate for myself to have the Lupron Shots resume, unless she has research demonstrating another pathway. I have enjoyed the break from the Lupron a little more energy, a little more mental “with-it-ness”, not as much emotion on the tip of my sleeve, not as much muscle and joint pain and discomfort, being more present when visiting our children and grandchildren, still a unick in the marriage embrace. Our goal as a married couple when we hopped into the canoe and started down this meandering cancer creek was for greater longevity for me so my wife, whose family line usually lives a long life, isn’t alone as a widow too long. So I did 25 External Beam Radiation Treatments (EBRT), High Intensity Radiation (HIR) and the Lupron shots (ADT- Androgen Deprovation Therapy). I am retired, thankfully, as I had a physically demanding job and could never handle it with the Lupron. God Bless you all,