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Autoimmune Diseases | Last Active: Apr 30 10:33pm | Replies (189)
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@cwitton1 I thought you might like this article from the Autoimmune Association:
https://autoimmune.org/resource-center/diagnosis-tips/
And you’re right, many doctors don’t know or understand enough about autoimmune diseases. That’s partly because the diseases have similar symptoms and they are so vague that a doctor has trouble putting 2 and 2 together and coming up with something specific. And the subject of AI diseases is only lightly touched on in medical school because they are uncommon.
Try contacting one of these organizations for help: https://rarediseases.info.nih.gov/
https://rarediseases.org/
I would hate to see you give up! Will you continue looking for answers?
Replies to "@cwitton1 I thought you might like this article from the Autoimmune Association: https://autoimmune.org/resource-center/diagnosis-tips/ And you’re right,..."
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Hello Becky, Thank You so much for the information.!
I speak with aPain Phycologist, she has tried get through to him but in his own mind he is never wrong. He says things like, NO ONE CAN HELP YOU ANYMORE!!!!!!!! I'M A Fighter but no one to fight WITH me. He does help with the house, dishes, puts body lotion on my legs, I can't bend.
Again, Thank You!