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@marlow2

Jim is scheduled for the pacer surgery on 3-14-24. Then on 3-15-24, he will have the CT and MRI scans. As of yesterday, he has decided not to do the 18 months of hormone therapy that was suggested by the doctor in radiology. He thinks that Eligard and all the other hormone injections cause too many side effects. Has anyone had the Proton Beam therapy without Hormone injections & how did they do?

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Replies to "Jim is scheduled for the pacer surgery on 3-14-24. Then on 3-15-24, he will have the..."

@marlow2
One question. Did Jim have the Decipher test done? If so he should have that done before making any decisions on treatment and hormone drugs.

I was classified as intermediate based on my biopsies and May oncologist/radiolgist stated radiation and hormone treatments but (thank God) mentioned doing a Decipher test. I had that test and came back low risk not intermediate which does not have a recommendation for hormone treatments just curative radiation (words of my radiologist/oncologist).

So I had 30 rounds of proton radiation at UFPTI as May Jacksonville does not have proton radiation to treat prostrate cancer only photon. UFPTI radiologist/oncologist did not recommend hormone treatment either.

I have heard very sad stories of those takign hormone treatments and some that tolerate them quite well. But for me I did not want them and was glad that the Decipher test showed was not needed.

If you have not been told the hormone treatments are to starve the cancer cells of totosterone and keep from growing. Asked your oncologist/radiologist about the Decipher test. FYI, I had very little side affects from 30 rounds of proton radiation at UFPTI.

Look up the study "Radiotherapy with or without androgen deprivation therapy in intermediate risk prostate cancer". It says that it makes no difference in patients over 70 as Jim is.