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Evenity - My Email to FDA

Osteoporosis & Bone Health | Last Active: Sep 23 4:11pm | Replies (73)

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@rjd

Thank you for your efforts on this matter. It seems an issue that needs FDA attention and it is discouraging to learn that the agency does not appear to see it that way. I wonder what its position is on dosage for meds given to children?

Is there no osteoporosis patient advocacy organization? I see there is something called 'Bone Health and Osteoporosis Foundation.' But a very swift review of its website is not encouraging although it offers a program call Bone Buddies that sponsors online via Zoom weekly support group meetings. The Feb agenda can be found here. https://www.bonetalk.org/articles/bone-buddies-virtual-support-group-february-2024-schedule

Anyone have any experience with this group? Seems like an effort primarily to 'raise awareness' although there looks to be a recent merging of what had been 2 different groups so perhaps this suggests a broadening 'mission,'

I wonder whether this group might be interested in Norma's email to the FDA and the FDA's response?

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Replies to "Thank you for your efforts on this matter. It seems an issue that needs FDA attention..."

OOPS. Just discovered that the Bone Health and Osteoporosis Foundation, an 'advocacy' organization acknowledged 'support' from Amgen on its website.