3 yrs ago a NET removed from small intestine during endoscopy - since then all labs & CT scans have been fine, initial PET scan fine, yet I continue to be sick, having symptoms of NET. See my oncologist every six months, he is familiar with NET thru Dana Farber, he puts more faith in the lab results than in what his patient is telling him. For many years I have been told I had bad IBS-D ever though my symptoms were outside IBS. Mayo Clinic was just announced as being one of the leading NET hospitals in the country. This support group is outstanding. I have spent much time researching thru NIH, other legitimate resources and the common theme is this is a rare cancer and doesn't always show up in lab work, CT scans nor MRIs. I see my oncologist next month and he is very open to discussion, so I will ask about other diagnostic tests specifically for NET. The big hospitals in Boston, as well as other national hospitals, are more focused on the more ordinary cancers and from what I have read, NET research doesn't get comparable funding for research. I would be lost without this Mayo Clinic support group because we all have the same rare cancer. God bless.