I am 45 and I was diagnosed in 2019 on right side, mastectomy was one and then
implant was placed. I have been taking Tamoxifen since 2019. My Dr explained lot of side effect of Tamoxifen and I am aware of them.

After surgery I was going to lymphoma clinic to drain and then Physio Therapy because I started developing cording on right arm from where lymphnodes are taken out. My nurse told me I started having cording(AWS - Auxiliary Web Syndrome). Later they showed me how to break the cording, even my husband do them for me. I had been doing some starches, exercise to manage the pain and keep mobility as much as possible.

Initial it has started on right arm but after 1 year or so I started having on left arm and it has progressed in all over body. I have done MRI and even lately I have seen rheumatologist and did test and it was clear.

Last Oct I was diagnosed on other side mastectomy was done. My 2 lymph nodes were removed with mastectomy.

Even after 4 years of surgery and I am still living with pain mostly due to cording. Sometime it will be on legs, on finger, calf, stomach or chest. I am very active women and try to control my weight, do exercise, walking, keep my self busy with kids and family. But this pain drags me and my family behind.

Any one has any similar situation and how did you manage? Any suggestions are appreciated.

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