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← Return to Living with LPSVS (long post-COVID vaccination syndrome)
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Living with LPSVS (long post-COVID vaccination syndrome)
Post-COVID Recovery & COVID-19 | Last Active: Jan 7 8:29am | Replies (130)Comment receiving replies
@sandtoes My journey started locally and one of my Doctors called it "the journey of what its not", with every test in the book thrown at me. Timeline for all that was January '22 to August '23. In August I went to Mayo Rochester, spending 3 days there. Lots of testing and medical professional interactions. Back at home I had several virtual coaching sessions pulling together my personal plan and then across 3 months virtual follow ups with Nurses and PT. Short story my plan included prescriptions, supplements, exercise, meditation, the causes and counter measures for Exercise Intolerance and Post Exertion Malaise and understanding CSS (Central Sensitization Syndrome) which is how LC affects the body. Everything is directed at curing CSS. My 3 months ended in December, but I still stay in touch with Mayo medical professionals as needed.
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Thank you! Now we're getting warm... you wrote: "Short story my plan included prescriptions, supplements, exercise, meditation, the causes and counter measures for Exercise Intolerance and Post Exertion Malaise and understanding CSS (Central Sensitization Syndrome) which is how LC affects the body. "
Could you please tell us exactly which prescriptions, supplements, exercise regemin, for openers? Many of us can manage prayer or meditation, mindfulness, and the like, and have access to calesthentics if nothing else, but lack anything substantive to present to a physician who knows only what the mainstream medical pipeline feeds him/her regarding long COVID - and as many of us who post here attest, that's somewhere between ineffectual and counterproductive.