← Return to Living with LPSVS (long post-COVID vaccination syndrome)

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@arichards3

@abbydoo I have also been advised to not get boosted again. My plan is to have Paxlovid available should I have a bad case of COVID. My journey started locally and on of my Doctors called it "the journey of what its not", with every test in the book thrown at me. Timeline for all that was January '22 to August '23. In August I went to Mayo Rochester, spending 3 days there. Lots of testing and medical professional interactions. Back at home I had several virtual coaching sessions pulling together my personal plan and then across 3 months virtual follow ups with Nurses and PT. Short story my plan included prescriptions, supplements, exercise, meditation, the causes and counter measures for Exercise Intolerance and Post Exertion Malaise and understanding CSS (Central Sensitization Syndrome) which is how LC affects the body. Everything is directed at curing CSS. My 3 months ended in December, but I still stay in touch with Mayo medical professionals as needed.

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Replies to "@abbydoo I have also been advised to not get boosted again. My plan is to have..."

Thank you. When reading about long Covid I have most of the symptoms. It is so scary. My life has just changed to trying to survive. It is very frustrating when people or physicians are not real supportive. I am thankful for this group and open to all suggestions . I see I need to be more patient with myself.