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Anyone experienced Bone Marrow Transplant with TP53 mutation?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 9 4:42pm | Replies (20)
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@katgob

Hi all,
I do hope Steve replies.
My TP53 mutation looks to have me getting ready for a transplant. In January my insurance company was billed for HLA work. $6,000 plus. I had a blood test the 5th and my platelets are 98. White steady at 289 or so. Red high.
I have a tele- visit the 12th with the Dr. I read his December notes and they had 6 potential matches and one they were working on.
The Dr. Told me to just live life, but stay healthy. I did get a cold a month ago but I am good.
My older sister final understands the TP53. Sort of. She told our other sister she would do nothing if she has a blood cancer.
I want to hear what the Dr. Has to say on the 12th.

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Replies to "Hi all, I do hope Steve replies. My TP53 mutation looks to have me getting ready..."
Lori, Volunteer Mentor | @loribmt | Feb 9 7:38am

Good morning, @katgob. I hope @alohasteve replies too! I like to check in with fellow stem cell transplant friends.
You have a life changing adventure coming up. I’m sure you’ll have a ton of questions. There are quite a few of us in Connect who have had Allogenic transplants now so we’re right here for you anytime you need us!

It’s fantastic that you have 6 potential donors! Your doctor will zero in on the closest match to some of your genetic markers. My donor was a 20 year old male from the US. That’s all I know about him. He’s chosen to remain anonymous so after almost 5 years with his life saving gift, I still don’t know who he is. I would love to know! He owes me nothing, but I owe him everything! ☺️

Let’s find out what your doctor has to say on the 12th and go from there! Let me know if you have any questions, ok?

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