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DiscussionLeft ventricular non-compaction – LVNC
Heart & Blood Health | Last Active: Aug 22 4:06am | Replies (27)Comment receiving replies
Replies to "Hello I have a question I don't understand why if I have left ventricular non-compaction and..."
My husband was diagnosed back in 2022 and they put him on losartan too. His blood pressure was already super low like 90/60. He took it a couple times and then quit because it made him feel light headed and dizzy. He started having syncope episodes in 2020 and they attributed it to low blood pressure. As it continued and become more frequent and he started getting more injuries from the syncope (small brain bleed) we were sent to get more testing done and that’s when they found that he had LVNC. The electrophysiologist wanted to put in a pacemaker but we refused because he is very active and wasn’t even 40 yet. So they put in a loop recorder to track his heart rate and symptoms. He had some sort of episode at least once a month for that first year and the doctors had no suggestions for us but to monitor it. So, we decided to get another opinion from Mayo in Rochester and that was the best decision ever. The loop recorder results went to our main clinic and we would inform mayo of any episodes. The final episode scared us so much and the doctor that he insisted he have surgery as soon as possible. We were flying home from our vacation and his heart paused for 4.5 seconds picked up a beat and then paused for another 22 seconds. He felt dizzy, light headed, nauseous and like he was going to pass out. We are not sure if he did as I was sleeping and he doesn’t recall for sure. The surgery he had was a clinical study for an ablation. They ended up ablating 7 spots on his heart muscle last October. He followed up with a tilt table test a couple months later and no syncope or pauses. Also there have been no episodes since. He has to follow up by wearing a holter monitor each year to check his heart rate. He also still has the loop recorder that will let us know if he has any pauses but that should get removed in just over a year as the batteries only last 3 years.