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Statistics on progression free survival while on SSA / Lanreotide

Neuroendocrine Tumors (NETs) | Last Active: Feb 19 10:58pm | Replies (21)
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@netmike

I have heard of cases in excess of 20 years on SSA. I Believe Lano is about 15 Years old and prior it was the other ssa. I ask you what you eat typically in a week. Not how much , but what does it consist of? I am making progress on my NET , just over 5 years diagnosed, stage 4 to my liver.

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Replies to "I have heard of cases in excess of 20 years on SSA. I Believe Lano is..."
pavlina60 | @pavlina60 | Feb 9 8:28am

I am 14 mo post PNET, 1 yr after surgery. Stage 4 NELM. I , too, am curious about the diet!

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pete1962 | @pete1962 | Feb 10 7:43am

The 20 years is what I have heard too but I have not found proper statistics from research yet.

Regarding my diet; I eat pretty much everything I fancy. Since my Whipple I have bigger cravings for fruits and my tummy reacts to spicy food. I try to have vegetables or salad almost daily, eat more chicken than I used to and have my portions of Pizza & Pasta.

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