← Return to How do I get my Rheumatologist to listen ?

Discussion
Comment receiving replies
@pb50

I have or have had 10 on this list. No wonder my pain threshold is so high now.

Jump to this post


Replies to "I have or have had 10 on this list. No wonder my pain threshold is so..."

I hear you! Reactive arthritis caused severe back pain but it wasn't my worst pain ever. Trigeminal neuralgia (TN) gave me my perspective on what severe pain was. I called TN "facial electrocution." I couldn't even answer the pain scale question when TN flared. My wife had to explain to the emergency room doctors why I couldn't answer any questions. Trying to speak only increased the voltage applied to my face

I tried to manage TN with prednisone. A neurologist said prednisone wasn't used as a treatment for TN so I decided to treat myself. I called TN my "inflammation alarm."

I felt vindicated when the neurosurgeon said prednisone was probably helping the inflammation and swelling that was happening in an area near my brain stem.