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DiscussionHow do I get my Rheumatologist to listen ?
Polymyalgia Rheumatica (PMR) | Last Active: Feb 16 8:43am | Replies (33)Comment receiving replies
Replies to "I have or have had 10 on this list. No wonder my pain threshold is so..."
I hear you! Reactive arthritis caused severe back pain but it wasn't my worst pain ever. Trigeminal neuralgia (TN) gave me my perspective on what severe pain was. I called TN "facial electrocution." I couldn't even answer the pain scale question when TN flared. My wife had to explain to the emergency room doctors why I couldn't answer any questions. Trying to speak only increased the voltage applied to my face
I tried to manage TN with prednisone. A neurologist said prednisone wasn't used as a treatment for TN so I decided to treat myself. I called TN my "inflammation alarm."
I felt vindicated when the neurosurgeon said prednisone was probably helping the inflammation and swelling that was happening in an area near my brain stem.