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Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Neuroendocrine Tumors (NETs) | Last Active: Jun 10 9:58am | Replies (14)
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@ilovemykidsforever

I just joined I have men type 1. Does anyone else have men type 1?

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Replies to "I just joined I have men type 1. Does anyone else have men type 1?"
Teresa, Volunteer Mentor | @hopeful33250 | Feb 8 9:09am

Hello @ilovemykidsforever and welcome to Mayo Connect. Here are the links to additional conversations where you can meet others:

- New to Mayo: MEN1 with duodenum NET G1 https://connect.mayoclinic.org/discussion/new-to-mayo/
- I have a disease called multiple endocrine neoplasia 1 (MEN-1) https://connect.mayoclinic.org/discussion/i-have-a-disease-called-multiple-endocrine-neoplasia-1-and-i-have/

As you are new to Connect, I would enjoy getting to know you. Could you post a bit more about this diagnosis? For example: How long ago were you diagnosed with MEN!? What type of symptoms were you having that led to the diagnosis? Have any treatments been suggested?

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matt2024 | @matt2024 | Jun 10 9:58am

Hi @ilovemykidsforever - not sure if this is still an active thread but I was diagnosed 5 years ago and have had a lot of surgeries and treatments that I can share if it helps. Thanks - Matt.

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