← Return to DCIS Negative ER/PR - What tests can be done to monitor reoccurence?

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@gillbell84

Thanks for that - everyone's journey can be so different. Ive asked my specialist at cedars what else i can do besides just the physicals every 6 months. People say oh its great you only had DCIS but the worry dosent go away and I feel this is compounded with the fact mine was aggressive and hid so well for Im guessing many years - i suspect I had it for 3/4 years before it was found at least.

And yes I read also how the reoccurrence rates for hormone positive and negative differ and change over length of time - how strange this is. Its all so complex but I keep saying the risk is individualised so why cant we get tests that take this into account when it comes to monitoring.

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Replies to "Thanks for that - everyone's journey can be so different. Ive asked my specialist at cedars..."

I have been concerned about unusual hip pain twice, and my oncologist just referred me back to PCP for x-ray. I believe it is a bone spur pressing on a nerve and not cancer. Basically after 5 years we are kind of discharged! With double mastectomy and DCIS you have a great chance. I dislike the term "survivor"!

I have very recently been diagnosed with DCIS. This is a new journey and I am scheduled in to see a Dr for the next steps.
In researching I have come across Digital Infrared Thermal Imaging. This may be an option for you in conjunction with other types of monitoring.
I wish you the best!